People who haven’t really resumed socializing at levels they used to, people who lost the capacity to regulate during interpersonal interactions, people who lost trust in others… I encounter lots of partial returners out there

  • TwanHE@lemmy.world
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    13 hours ago

    Small rant incoming:

    I’m actually still stuck inside more than in the Pandemic. Essential worker so I still went outside daily until i never got my energy back after having covid for the 5th? time.

    About 3 years of doctors not really knowing how to treat it and encouraging me to keep trying what i could each day, which led to me basically destroying my body, until i got one of my countries leading experts who immediately told me to take bed rest the second i feel tired.

    Since my immune system is basically gone i got a bunch of other illnesses some of which will probably never go away since the meds only alleviate the symptoms.

    Upside is that I’ve been trialing a bunch of expirimental treatments for the specialised clinic that is opening soon, some of which had small but immediate effects. So at least those that will get diagnosed in the future don’t need to wait as long hopefully.

    • Executive Chimp@discuss.tchncs.de
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      2 hours ago

      I got ME/CFS (closely related to long COVID) that first started in early 2020, so this is very relatable. As everyone was going back to normal I was getting worse. Do you mind if I ask what had a good effect? The only thing I’ve found that helps (other than rest and pacing) is nicotine patches for the brain fog.

    • classic@fedia.ioOP
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      10 hours ago

      I’m glad to hear you live in a country where you can get more specialized support! I hope the new treatments pan out